I knew my message to Chloe’s doctor would begin a cascade.
She had a couple of bouts of severe pain over the last couple of months. It knocked her for a loop. Brought panic to her eyes. Then it subsided.
Turns out she’s been having less severe pain as often as once per week.
The First steps to figure it out began. Blood was drawn. An ultrasound was performed.
The initial results were not good. Liver enzymes were up. Her common bile duct enlarged.
Chloe had an MRCP done. The results indicated that there’s probably been progression in the Primary Scleroscing Cholangitis. But her liver specialist said that other factors might be in play as well.
Chloe had her annual colonoscopy the next day. After a monumentally horrible clean out process, she sailed through the procedure like a trooper.
Her GI doctor reported that visually her colon looks good. After a week her biopsy results show minimal inflammation.
Thankfully the “knock your socks off” pain isn’t frequent. Some kids with PSC have pain that’s never figured out.
Our scurrying for answers and to appointments and tests is over for now.
If Chloe has another severe episode, she’ll have blood work done. We also plan to document all pain plus be ever faithful in taking her medications.
This is another reminder that this is a long haul with Miss Chloe. Thanks for all the prayers.
Romans 12:12 Be joyful in hope, patient in affliction, faithful in prayer.